Gannon learned a new sign! I present to you: ALL DONE!
Gannon knows sign language for “Please” “More” “Yes” and now “All Done.” Some might argue this isn’t technically American Sign Language but these are the signs/motions our family uses and that I taught Carver and my mom uses at daycare.
As you all have read on my last blog post, Gannon’s Milwaukee appointment was cancelled. As disappointing as that is, Milwaukee is SWARMING with COVID 19 right now and Gannon’s appointments aren’t “necessary” at this point.
Gannon’s follow up hearing retest has also been postponed so we aren’t sure if Gannon’s hearing got better after surgery. I had looked into enrolling him in weekly speech therapy and that got delayed. Our keystone early access meetings are on zoom now and I feel like we aren’t making a lot of progress there either.
I mentioned that Gannon was doing much better. I want to take that back just a little bit. Gannon isn’t vomiting like he was in January. Gannon can eat anything we put in front of him. These are both vast improvements. Gannon seems more interactive after he got tubes in his ears but it isn’t a huge night and day difference. Gannon LOVES pickles.
Here are concerns we still have: Gannon still isn’t walking. Gannon still doesn’t have any words. Gannon still cries when he poops. Gannon is still pretty constipated. Gannon’s belly has gone back to the way it was before his orchiopexy as you can see:
A year has come and gone and Gannon has given us quite a few grey hairs but he is just the sweetest kindest little boy. We still don’t have an official diagnosis but we do know a few things:
- Gannon has some hearing loss and got tubes in both ears.
- Gannon has a redundant colon (lots of extra colon).
- Gannon struggled with wheezing this past fall.
- Gannon had bilateral cryptorchid (descended testicles).
- Gannon had a bilateral hernia repair, orchiopexy, and bilateral hydrocele repair.
So that’s what we know about our Ganjo. We are working so hard on animal sounds and sign language as much as possible. It’s so hard to believe that a year ago we were being discharged with Gannon from St. Mary’s with no idea what this next year would hold for us. We were told he had a milk protein allergy and good luck.
I’ll keep fighting for you Gannon Joseph!
Read more about Gannon here: