It’s late. It’s been a running day.
0430 Carver was up and ready to go for the day (ugh). He ended up waking up the whole house.
We had a hearing test/check with ENT for the boys. They told me to bring two adults to the appointment so we could switch out hearing tests with ear checks so my mom thankfully tagged along.
Here’s the scoop:
Gannon’s hearing loss completely resolved after tubes. After three sets of tubes and adenoids out, Carver has GRADUATED from the ENT clinic with no more scheduled follow ups! We ate lunch at Culver’s to celebrate. It was a good morning.
At 3 pm we had a zoom call with Gannon’s Keystone team. We’ve added a physical therapist to our team which gave some excellent insight! Here are some things we talked about:
Gannon’s walking has taken off. He’s doing better every day. He does a “walk walk plop” is how I would describe it, falling down every two steps or so his legs look like jello when he walks and I’ve presented some concerns with the way he walks/stand on his feet. He also does a W sit OFTEN which is a sign of low muscle tone/weakness. Nothing we didn’t already know.
So just assessing Gannon, she has confirmed what we suspected: low muscle tone. Which can be nothing or it could be something. He’s just got weaker muscles. When I go to sit Gannon up I feel like all of his joints are loose and stretchy, also a sign of low muscle tone. If you google “low muscle tone” it spits out a variety of genetic conditions and diseases but it could also be as simple as it sounds: low muscle tone.
Gannon squats down to pick up toys really well. He does have some great milestones he’s hitting with his gross motor development but there are some areas that need work.
Gannon might need some kind of brace/shoe inserts to help his knees/legs/feet stay aligned because of the low muscle tone. When we go to center for disability and development on June 17th we will learn more. They may possibly get some pediatric orthopedics involved as well depending on their concerns. We are concerned about the way he is knock kneed and walks on the inside of his ankles.
They are also happy we got in with peds neuro the same day. I told our new physical therapist “Welcome to Team Gannon!” We really do have a team with some excellent resources and I’m so thankful.
Gannon signs “thank you” which is just so sweet. He says “ba ba” for bottle and “da da” – really his only two words/sounds but hey! He has only been hearing for about 3 months now! That’s not bad! However, we still have a speech therapist eval next week to see if he would benefit from outpatient regular speech therapy.
That’s what I know! They had commencement tonight at the high school and had a parade of seniors through the local towns with the fire departments etc. it was GREAT! So nice to see the towns come together!
We That being said we are POOPED and it is past our bedtime so peace out friends! ✌?
So awesome to see his report and that he’s making progress. He is such a darling little boy and I’m glad you are making his medical intervention happen now. Will be so helpful in years to come for him.
Thanks for the update. You know we are all concerned about him and his progress.it sounds as if he is picking up now that his hearing seems to be resolved and that’s great! It will be great to hear what his medical team says next month. Keeping all of you in my prayers.
There are so many positives there, yes lots of concerns but so many things going right! Early intervention ride on momm
Yay for the progress being made with Team Gannon!!! I’m so glad that his team is expanding to include more professionals to help – that’s always a plus!! You are such a great advocate for those you love!!
Thank you for the update. Sounds like Gannon is really starting to take off. Continuing to keep that little guy in prayer.
Love and prayers
Glad he is doing better. He has some tough little feet to be standing on those stones!