This morning I just wanted a break. After rounds, Gannon was wild. I had to chase him around with his IV pole, we aren’t allowed to walk outside of our room in the hallway, the play rooms are closed, we were absolutely stir crazy. Gannon was fussy because he couldn’t eat or drink anything because he was sedated for his MRI.
I spent the morning cursing coronavirus because I just wish I had someone with me who could take over. I wish a volunteer could come sit with him while I stroll to the gift shop. I needed a break.
Gannon is currently in MRI getting imaging of his spine and brain. All I wanted this morning was a break and now all I want is Gannon to be back. It’s been a few hours, we have a few hours to go. This empty room is too empty.
I thought I wanted to leave and drive to Lake Michigan that I can see our the window but it doesn’t feel right leaving.
They’ve coordinated a genetics consult for us whole we are in town. Might be tonight, maybe tomorrow. They are so hard to get into so I’m so so thankful. So, another night.
I took a bath, did my hair, washed my clothes, caught up on Netflix, I feel human again and I smell good again.
I wanted to offer a glimpse into how COVID has effected our hospital stay.
First of all, this admission/testing was scheduled for April and canceled and rescheduled.
I’m not even going to get into the COVID swab fiasco but we had to have two negative COVID swabs to be admitted.
Second of all, only one parent is allowed. That sucks.
Third of all I have to wear a mask everywhere (understandable) and all nurses/doctors are wearing N95s.
Fourth of all, some consults with the specialists have been on zoom.
The gift shop is closed/limited hours which is a bummer because I want a T-shirt.
The main registration almost kicked my grub hub delivery driver out of the lobby before I could make it downstairs to get my food because he wasn’t with a patient. I hollered “Hey are you grub hub? That food is for me!” After I hadn’t eaten all day and spent the only 5 minutes I had to myself walking down to get my food this was kind of frustrating but I get it.
There are no volunteers which is a huge bummer – so many times they’ve offered to sit with Gannon or take him in a wagon ride to give me a break but not this stay.
It’s all okay but a huge difference from our other hospital stays.
That’s what I know. I’m counting down the minutes until Gannon comes back. Did you catch this mornings update? Check it out here: