One item in this photo (I went on a bit of haul today) cost $1,800. Can you guess which one?
If you guessed Gannon’s braces (SMOs) you’re right. Granted we already met our deductible 15 times over this year and we didn’t pay a penny out of pocket, but can you believe these little plastic things cost that much?
Gannon had a well child check, caught up on vaccines, and then we headed to Waterloo to pick up his new accessories. Gannon needs to wear these braces to correct a hind foot valgus. This is an example of an X-ray of someone else on the internet but it helps you see what we are working to correct, essentially his ankles roll in. This is common in EDS (Ehlers Danlos syndrome). Think joint weakness.
One thing I was not prepared for was how difficult it would be to find shoes that fit the orthotics. Gannon is a size 6 or so in toddler shoes (he doesn’t really wear shoes honestly, physical therapy says it is good for his feet).
We got him fitted and bought some fancy Nike sandals in May and he has maybe worn them 5 times and every time he rips them off and 90% of the rest of the time, I have no idea where they are. It is a constant battle to find Gannon and Carver’s shoes. Well, we’d better start paying way closer attention to wear those darn shoes are.
So when we got told Gannon would need SMOs, they told me that he *might* need a size bigger in shoe and that *maybe* going up one size would be enough. They also recommended these zip-ease Nike shoes that I went and bought on Zappos in Gannon’s current size.
Long story short, I spent 2 hours between Scheels, Shoe Department and Target trying to find shoes to fit these $1,800 chunks. The only thing that will *barely* fit are SIZE NINE! From 5.5 to a size nine is a huge jump. The length of the SMO’s measure at an 8 but the width and the height of the shoe are out of this world. If I can get his foot in, the Velcro doesn’t fasten or the tongue sticks out way too far.
So these shoes all technically *work* but they are WAY too long and I think Gannon will trip in them. So the search will continue. Honestly, the crocs fit the best so far. She said it is less about the actual shoe because even if they aren’t supportive the orthotic does the supporting. I’ll probably return most of these once I do some more drinking and testing and research on the best SMO shoes. They need like an elastic closure or tongue because that’s where it is so so bulky.
Oh and BTW Gannon will need new orthotics and new shoes every 6 months to a year so this looks like it will be a CONSTANT battle 🙁
Gannon and Carver were so so patient with me as we sat in the stores trying to squeeze Gannon into all of these shoes. Carver was doing so well until I heard a THUD. I have no idea what happened. I turned around and carver was bawling. He had fallen off of the shoe bench and landed right on his head. He was okay after a hug and some snuggles but the thud must have been heard round the store because within minutes the OWNER OF SCHEELS was taking my name and number and asking if we wanted an ice pack – I was like dude, I’m not gonna sue you because my kid fell down. He was very very kind though. It all turned out okay.
I’ve been vlogging a lot this week so look for that coming in the next two weeks or so.
I have so much I want to blog about but no time to blog! I haven’t even been working that much but the boys are BUSY BUSY BUSY! It’s easier to grab my phone and vlog than to occupy them for 20 minutes to BLOG.
Thanks for reading guys!