Gannon update

Hey guys – just wanted to jump on here quick and let you all know how Gannon is doing. I’ve gotten so many emails about how he is doing. You haven’t heard from me since last Friday when we had a really terrible day. Read more on that here.

As I’m writing this it is Tuesday afternoon and he has had a fever for 6 of the last 8 days, and his ear infection is 21 days old today. Gannon is not himself, is hesitant to eat, drink, or walk around. He’s pretty grumpy still. Gannon has been on three different antibiotics now and still is having fevers. Last night we were in urgent care again after he wasn’t taking a nap and spiked a temp again.

They did some blood work, Gannon’s white blood cell count was pretty low – normal is 5-10 and his was 2.2. There’s a number of reasons this could be – a virus, antibiotics he was on etc. but it does need follow up. Low white blood cell count can make it harder to fight infections which is probably why this has drug on so long. I’m sure there is a very simple explanation and when we get follow up blood work it will all be just fine. I just need to stay off of google in the meantime.

Speaking of follow up, it’s really hard with Gannon. He’s got a lot to consider. He’s got issues that don’t even have a diagnosis yet so it’s just really hard to approach this like a normal kiddo. Should we go to Iowa City? We only have specialists in Iowa City. Our GI doctor or our neuro doctor can’t help us with this. But Gannon may need more testing or different considerations that is more than our clinic can handle. It’s always a tug between the two.

Today he was woken up after 12 hours of sleep and then I had to wake him up from a 5 hour nap. He’s still punked out, still has a 101 fever, pale, has this sick look in his eyes. My mom gut is on high alert and I’m just trying to chill out until our follow up on Thursday and stay OFF OF GOOGLE. Because if I fall too far down the google rabbit hole I start looking at things like neutropenic fevers and pale and fatigue and low white blood cells and difficulty fighting infections and I’m not allowing myself to go there until we see how Thursday pans out.

I wish I had a better update. I tried posting my regular content but (and I mean this in the most loving way) people were more worried about Ganjo. And I am too. I’m ready to see the spark back in my peanut.

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4 thoughts on “Gannon update

  1. Christi says:

    Poor child. His insides must be a mess from all the antibiotics. ENT doctors have no thoughts on this one? He needs serious Probiotics of some kind. Can he tolerate any yogurt at all? That is a long time with a fever.

  2. Laura C says:

    You’re a good mom with good kiddos and you’re all going through a really crappy time right now. Although it might not seem like it, this will end, things will get back to normal. When the boys look back on their childhoods, they will remember your love, advocacy, and the fact that you were always there. You’re doing the best you can right now and that is exactly the right thing to do!

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