Gannon Update – Not All Bad

Okay, we are officially 10 days out from Gannon’s surgery and I have a better update for you than I did on Monday night. Gannon is having his best day since the surgery today. He wants to play, heck he even went and put his boots and coat on and wanted to go play outside. Gannon is doing much better…until his meds wear off in the slightest.

Gannon has been struggling with ear pain – yes he does have an ear infection but he describes his pain on both sides. All last week while we were in the hospital, Gannon really didn’t complain of pain. We assumed he was in some pain but he didn’t verbalize it. Gannon is still getting Tylenol and Ibuprofen as often as he can but that wasn’t enough. He LETS US KNOW his ears hurt. This kid really doesn’t complain about pain (unlike his brother Carver) He was constantly complaining about and holding his ears.

After a LONG back and forth with the hospital and the ENT clinic, they said there are nerves exposed during the surgery that usually around day 7 post op, can send pretty bad pain to the ears. So if Gannon’s meds even just barely start to wear off, he’s a puddle. He just melts, cries, screams, holds his ears.

Yesterday I called and they sent stronger (narcotic) pain medications for him to (the wrong) pharmacy (after hours, 5 hours after they said they would send it) so I had to call AGAIN and have it sent to the right pharmacy that was open that late. But then they sent the wrong strength so I had to call and ask for the RIGHT strength sent. The pharmacy closed at 8 PM and I finally got his meds (from the wrong pharmacy) at 7:45 PM. You can bet I called and complained about that mess, especially when I found out Gannon cried the ENTIRE time I was gone.

So he’s good, as long as he’s drugged up 🙁

He tried a popsicle today which was about a nibble but I’ll take that. Otherwise we’ve made zero progress in swallowing anything. He will see his AWESOME speech therapist 3 times per week.

He’s *almost* sleeping through the night. Those super scary coughing fits are few and far between. Our feeding pump is just the most wonderful thing ever.

I just wanted to give a really quick update, I’m off to pick up Carver from the bus and help Mom learn how to use her new camera!

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3 Comments

  1. Shirley
    December 15, 2022 / 10:52 pm

    What encouraging news! Praying that Gannon will soon be pain free and well on the road to recovery so he can enjoy Christmas.

  2. Elle
    December 16, 2022 / 12:03 am

    Oh I cannot imagine your relief to have the right pain med, the enteral pump, and speech therapy started!

    Enjoy some Mom time and get some Momma hugs 🙂

  3. Beth T.
    December 16, 2022 / 5:07 am

    Hey, Kalissa. I’m tucked up in my guest room, having had my shingles, bi-valent, and flu shots today, and am finally poking my head up to see how everyone is doing. I know you guys are still in the middle of it–glad for the progress, but so many worries and such a lot of heavy lifting right now. I just wanted to check in and let you know that I think you’re doing so well, holding things together (with help, of course) and focusing on what matters. I know there is a lot of prayer and good energy coming your way. Maybe they’ll bring you a good night’s sleep. 🙂

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