Gannon Update: Botox Round #3

This happy boy is finally home.

It was 54 degrees when we left Iowa City. It’s currently 10 degrees with insane winds and snow. I’m so glad I don’t have to work tonight! We just about blew away on the way home. Holy wind. Sounds like Minnesota is getting hit pretty darn hard.

Gannon got car sick about 5 miles out of Iowa City. Ever try catching puke while navigating the 380 and I-80 interchange? 0/10 would not recommend.

Imagine this: trying to catch puke, driving down the interstate, then trying to pull over, then feeling too unsafe to pull over, flooring it to the nearest gas station like 3 miles down the interstate, unsuccessfully catching any puke, then the door damn near blowing off of my car while I clean up a screaming still half way drugged up Gannon, having to do a full clothing change, my phone kept ringing while I was busy, and that terrible wind – it was just a scene.

They used a different kind of sedation – ketamine – when we give kids ketamine in the ER they are more prone to puking too.

View of Kinnick Stadium

Less than 2% of kids with anal achalasia DON’T have a form of Hirschprung’s so in simpler terms, Gannon is rare. We have no idea why this last round of Botox didn’t work – maybe a bad batch? Admittedly, Gannon has our GI doctor scratching her head. She reached out to our GI team in Milwaukee to see if they have any more thoughts. She is in total agreement with my concerns – she always has been and she isn’t afraid to admit when she isn’t sure – my FAVORITE characteristic in a healthcare provider. Seriously. I’d rather you tell me you don’t know than to shut down any other options because you’re afraid to admit you aren’t certain of what to do next.

The team was so fabulous I sent them all a Jimmy Johns party platter after we left. Our GI doctor came in on her day off to do the procedure. She’s just awesome. We had several of our same nurses we’ve had other times – one nurse that cared for Gannon had worked with some people I worked with. She was also an ER/ICU nurse! Small world. She was so nice.

Enjoy some happy baby versed induced giggle pictures. We are home for the holidays and Santa is coming early tomorrow morning (Christmas Eve) because mommy has to work the rest of the week 🙂

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6 thoughts on “Gannon Update: Botox Round #3

  1. Suzanne Yerks says:

    Aw I feel bad for Gannon. I had a bad reaction to anesthesia like that when I hand repairs to broken bones in my hand. Besides the vomit, your all worn out and out of sorts. I hope you all have a Merry Christmas and this is near the fix for your sons illness. God Bless

  2. Sally says:

    I am praying too. I know you missed Craig on this recent trip for Gannon’s procedure! I am surprised/disappointed they still won’t let you get him swab tested for covid closer to home. I understood more six months ago, but we have learned so much in the interim period and seems they would be more flexible now. I hope and pray you will have good results from this time. Have you ever asked any parents in the support groups if anyone has figured out a helpful setup in the car to deal with the child throwing up while you are driving? Maybe someone has figured something out. Happy Christmas, Kalissa!

  3. Christi says:

    My heart aches for all of you. Many prayers. coming your way. There are bibs called OXO Tot silicone bib . You can remove the silicone cup part and sew it onto a larger neck if you need to. This will at least catch the vomit. I have used these for my grandsons.

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